The partnership of the Erasmus+ THE VALUE OF FACING SCHOOL, co-funded by the European Union, met at the primary school CEIP Clara Campoamor (Málaga), on November 17th, to conduct the pilot test of the project. It was divided into two different groups: 6th grade students (10-11 years) / 2nd (6-7 years old) grade students. Among the students were children affected by rare diseases and neuromuscular dystrophies, as well as other pathologies such as autism. School teachers and parents also participated in the pilot tests.
The partnership explained that the Erasmus+ programme connects professionals from different countries of the European Union aiming to develop initiatives to support education and youth. We also explained that when we talk about rare diseases, the adjective «rare» should be interpreted as «infrequent», because of the low prevalence of individual rare diseases and the large number of existing rare diseases. However, it must be clear, that these pathologies affect more than 30 million of people in Europe.
During the event, we put into practices some of the resources we have developed within the project. We showed them a video of inspiring stories of young people affected by these pathologies as an example of courage and strength. We also did a role play to encourage students to experience the difficulties that these young people must overcome in their daily life. And we learned to use pictograms for communication, which helped us to understand the importance of using an inclusive language to represent all kinds of people. Besides, we shared with teachers and parents inclusive methodologies and multiple recommendations to benefit digital learning.
We would like to thank you the primary school CEIP Clara Campoamor and all the participants for the kindness and support. All the students, parents and teachers showed a collaborative and positive attitude. It was very exciting to finally see the results of the project developed by the partnership working for the inclusion and accessibility of the people affected by rare diseases and neuromuscular dystrophies